Hello Everyone!
I have some exciting news. I just signed up to Run for William, a sweet 6 year old boy I know living with Duchenne Muscular Dystrophy.
Duchenne is a rare and devastating genetic disorder that affects boys, resulting in muscle wasting and loss of mobility. Boys with Duchenne rarely live into their late twenties. Heartbreaking.
I’m proud to be part of his community, along side his family, who continues to hustle to raise funds for his treatment, much of which isn't covered by insurance.
A non-profit named Cure Rare Disease is working with his family on a unique clinical trial where each patient gets their own custom treatment using CRISPR gene editing technology. A team of researchers is working to formulate William’s individual treatment, and they are at a critical stage of research and development, but funding this research is very expensive.
Can you help me raise $ for his treatment this year? Here is the link to my page https://runsignup.com/laurenrunsforwilliam and thank you for helping William!
Running for William,
Lauren Clary
