
May 16 & 17 the CACNA1A community will Run, Walk, and Roll for Research.
Be part of this heartfelt, fun-filled, inclusive event.
Every step we take is one Everly can't always take on her own — and that's exactly why we walk, run, and roll together.
Everly lives with CACNA1A, a rare neurological condition that affects her movement, balance, and development. But if you know Everly, you know she doesn't let that stop her fighting spirit. She shows up every single day with more heart than most of us can imagine.
Last year, our team raised over $5,000 — and together the CACNA1A Foundation raised over $100,000 for research, resources, and families just like ours. This year, we're doubling down. Our team goal is $10,000, and we're helping the Foundation reach $150,000.
Every dollar funds the research that could change Everly's future — and the future of every child and family living with CACNA1A.
Join our team. Share our page. Donate if you can. Walk with us, run with us, or roll with us — however you show up, it matters.
This one's for Everly. 💛
Please join me in supporting the CACNA1A Foundation by donating to my fundraiser for the 6th Annual CACNA1A 5K! All funds will directly support their mission to raise global awareness and funds for much-needed research for CACNA1A-related disorders. Current treatment options are limited, and there is no cure.
Together we have the chance to accelerate life-changing research and improve the lives of those affected by CACNA1A!